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Last updated: Monday September 22nd, 2003

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Welcome to the
Churg-Strauss Syndrome International Support Group.

 

The group started in mid 1997 and aims to provide information, encouragement and fellowship to Churg-Strauss Syndrome patients, care-givers, friends, physicians and relatives and to stimulate debate about the condition ensuring it receives wider recognition.

On first receiving a diagnosis of Churg-Strauss Syndrome it can be very difficult to find any information about it anywhere. This in itself can be very distressing for patients and their friends and family alike. This organisation was set up because some of us found it very difficult to access information, other than what was available on post-mortem diagnoses. This was somewhat demoralising, when what we wanted was to find other living breathing Churg-Strauss Syndrome patients.

Of course people do get Churg-Strauss Syndrome and live! We aim to show that and to work together to help others in similar situations. We have found that discussion and feedback with others can be very supportive, but because the illness is so rare and patients are geographically spread out contact with other patients and carers can be difficult. We have found that the Internet provides the link we need.

The Churg-Strauss Syndrome International Support Group is an outreach arm of The Churg-Strauss Foundation Inc. A non-profit making organisation.

Should you seek further information or wish to make a charitable donation, please e-mail Gary Todd  European Co-ordinator of the  Churg Strauss Syndrome International Support Group.

More information on this is available on our Site Information page

We are proud to announce that the Churg-Strauss Syndrome International Support Group website has recently been awarded the Royal National Institute for the Blind's "See It Right" accessibility accreditation which is kindly supported by Standard Life

 
     
   
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