Welcome
to the
Churg-Strauss Syndrome International Support Group.
The group started in mid 1997 and aims to provide information, encouragement
and fellowship to Churg-Strauss Syndrome patients, care-givers, friends,
physicians and relatives and to stimulate debate about the condition ensuring
it receives wider recognition.
On
first receiving a diagnosis of Churg-Strauss Syndrome it can be very difficult
to find any information about it anywhere. This in itself can be very
distressing for patients and their friends and family alike. This organisation
was set up because some of us found it very difficult to access information,
other than what was available on post-mortem diagnoses. This was somewhat
demoralising, when what we wanted was to find other living breathing Churg-Strauss
Syndrome patients.
Of course people do get Churg-Strauss Syndrome and live! We aim to show
that and to work together to help others in similar situations. We have
found that discussion and feedback with others can be very supportive,
but because the illness is so rare and patients are geographically spread
out contact with other patients and carers can be difficult. We have found
that the Internet provides the link we need.
The
Churg-Strauss Syndrome International Support Group is an outreach arm
of The Churg-Strauss Foundation Inc. A non-profit making organisation.
Should
you seek further information or wish to make a charitable donation, please
e-mail Gary Todd
European Co-ordinator of the Churg Strauss Syndrome International
Support Group.
More information on this is available on our Site
Information page
We are proud to announce that the Churg-Strauss Syndrome International Support
Group website has recently been awarded the Royal National Institute for
the Blind's "See It Right" accessibility accreditation which is kindly supported by Standard Life
|
